I feel like I just hung up the phone without mentioning the most important thing which is that we learned last week some really important news from one of BG’s doctors. You see, the mutation that led to his leukemia was one that is not typically a germline mutation, meaning that it isn’t necessarily a hereditary mutation. Still, there was some question about whether this was a mutation he was born with or whether it was something that happened later. Being born with it could indicate that there was something that passed to him from either me or the donor.
Well, modern science is pretty amazing and somehow they were able to test blood of his (within the bone marrow, I do believe) that is essentially the same blood that he has had since birth, since he was created, and last week, when a couple of his doctors came to visit, his research doc told us that our boy was most definitely not born with this mutation. It happened later. Sure it’s unnerving that we don’t know when or where or why, but the takeaway is this: it wasn’t me, and it wasn’t the donor, and it was just some horrible fluke.
Such a weight lifted when he shared this with us because as we talked about whether or not to use the same donor this time, it certainly occurred to me that I could have the offending DNA, that it was somehow my genetics that caused him to get sick. But no. No. It’s just the way his life played out. I’m still not happy about that, nor will I ever be, but I can rest a little easier that maybe our next child will, in fact, grow up one day (after an extraordinarily easy and quick conception and gestation and birth and babyhood, right?).